Monday, June 29, 2009

Not so great results and other exciting news!

Hi, just wanted to let everyone know I the CT scan on Wednesday of last week but my results weren't optimal by any means. All of the tumors that showed up on the PET scan in April are apparently still there. Then all of the new little bumps that I have been complaining about in my neck are showing up on the CT now. At least I'm not crazy and imagining things. Also, my CA 27.29 blood marker tests came back and they made another small jump from 119 to 141. It's not out of control by any means but I'd prefer it went in the other direction. The amount of disease I have is still fairly mininal but it doesn't seem to be going away. We are still waiting on any news about the new trial. It is supposed to be enrolling in July so that's right around the corner.
I just went out and rollerbladed 6 miles. It is such a beautiful day! It's a little warm but that's why we're headed to the pool after lunch.

Ok here's the other news! I'm so excited! I had read the information for the Wood River Fun Fest and I noticed there was no news about a fun run like last year. I called someone from the committee and she said they didn't have enough volunteers so they weren't planning on a run for this year. So now I am the new "Fun Run Chairlady"! I am going to start organizing a run/walk for the morning of the parade on August 22nd. I can't wait! This is right up my alley with my new found love for nutrition and exercise. If anyone has any ideas for me let me know. We are going to use the same route as last year but last year we only had like 13 people. This year we are going to have many more than that! I will keep people informed on here and I will also put something in the paper. I also want to do t shirts so I may need to find some sponsors and I have no idea of how to do any of that so I guess I wll learn.

Have a great day! Heather.

Monday, June 22, 2009

Post Relay for Life and isn't my niece cute!


Sorry it's been a long time again! It's so busy now that school's out and baseball is in! Tanner has been playing about 6+ games a week between Wood River league and the GI Riverdogs. Cauy, Sage and Ellie combined have 3 games a week so it keeps us pretty busy, but I love going to baseball so I wouldn't have it any other way. Unless of course I could take chemo out of my schedule, that would make it easier. I can't complain a whole lot other than the fatigue and headaches. O yeah and the new allergies I developed, so if you've talked to me in the last week I've sounded stuffed up except for when I actually remember to take the Clarinex D that the doctor gave me. It seems to help more when I remember to take it.
The Relay was fun on Friday night. There were so many people out for it. Thanks to all those people who come and a special thanks to all those that do so much work getting ready for it, like Cindy S. for example! You go over and beyond girl, thanks! I'll share a picture of my niece Emersyn from Friday night, of course it's already on my website homepage I couldn't resist she's so cute. Notice her shirt says "Fight like a girl"!
Dr. C emailed me today about the study I am hoping to get in. They are telling him they will try and have it open in July sometime. I will keep you posted on that. I am having a CT scan on Wednesday that will be of the chest and neck because I have some new bumps on the right side of my neck and it has been really sore. Also, they drew my blood to check my tumor markers today so those results should be back hopefully by Friday if I'm lucky. Hope those are down with these new 3 drugs.
O by the way, yesterday was my 35th birthday, thanks to all those who sent me texts and wrote on my facebook wall. It was a nice day spent at baseball with family. Matt and my mother/father in law got me a Blackberry Curve. I've been playing with it ever since. I love it. Technology is amazing! It kept me entertained at chemo this morning trying to learn what it does. I can remember when I was about 20 and thinking 30 was so old, it's amazing how much your thinking changes as you get older and especially now with the cancer. I don't look at 35 as a bit old now and knowing how blessed I will be when I make it to 40 and on!! I know I can beat this and I will continue to do everything I can to make it happen! Thanks again for the birthday wishes and watch for the CT update, pray for good results! Thanks, Heather.

Tuesday, June 9, 2009

Post Cattlemen's Ball and Post Avastin 2

















Wow, talk about a post with a lot of pictures! I couldn't help sharing all the good pics I got at the Craig Morgan concert at the Cattlemen's Ball on Saturday. It was a lot of fun. The style show was very fun but I don't have any pictures of it, maybe if I can find someone who took pictures I can get some to post. I did get to wear a really cool shirt made by Tiffany Olson of www.stateteez.com . She has some cool t shirts she makes you'll have to check it out. I did post the picture of Angie and I from the Craig Morgan concert two years ago when we saw him in Kearney during our summer of chemo in 07. I thought it was funny that we were standing the same way this time. Course this time we have real hair! I am almost recuperated from Saturday, it was a long day but really fun and so glad I was able to help and participate.

Yesterday I had Avastin infusion number 2. I feel pretty good today other than being tired. I'm starting to get a bit achy in the arms but other than that can't complain too much. Dr. C did tell me about a new study he learned about at a big conference of Oncologists last week. It is specifically for Stage 4 Metastatic Breast Cancer and Triple Negative. You can't get any closer to what I have than that. It isn't open yet but will be this summer sometime. He is going to try and get me into it. It has what they call a PARP inhibitor pill half of the people take in addition to taking two chemo drugs. It's supposed to prevent the DNA of the cancer cells from replicating itself. Sounds promising!

Have a good week and I'll keep you informed on what I hear about it. Heather.