Thursday, April 30, 2009
Plan B
I went in for all my tests yesterday and got to visit with Dr. C for a long time about what we were going to do. He decided to put me on Xeloda which is an oral chemo I will take everyday for two weeks and then one week off, then start over and over and over. Anyway, at least it's oral and not the iv kind yet. It still has some crappy side effects but hopefully I will weather those as well as I did with the Sutent. He decided to save the 2 iv drugs i was going to start for later when we need them more. I have a brain MRI today at 4:45 and then I will start taking the Xeloda. There probably won't be anything in the brain but even if there is he said it would be minimal at this point. So everythings good right now, I feel really good, all of my bloodwork was great. I got my cholesterol checked the other day for the first time ever. I didn't think it would be high because I don't eat meat or anything that would make it high but I was pretty impressed with my numbers. My total cholesterol was 139, my LDL was 64, HDL was 60, triglycerides were 75 and my ratio was 2.3. So other than the little cancer deal I feel like I'm pretty healthy! Have a great day! I'm still going to lead the cleanse group (basically just healthy eating and exercise) so let me know! Heather.
Tuesday, April 28, 2009
Updated results
Well the call I got this morning wasn't really what we were hoping for. I have 6 + new tumors in my neck and chest and lung area. Not sure why these are growing but apparently I have become resistant to the Sutent oral chemo. Tomorrow I will go in at 8:30 to the hospital and have CT scan, Muga heart scan, EKG's and blood draw, then I will go to Dr. Copur's office and see the PET scan results and he will tell me what we are doing next. I will then start two new chemo drugs by iv port infusion tomorrow afternoon. I will post as soon as I find out what they are and what the plan is. This is just the next step in the journey, I'm not thrilled but it's what we've got to do! Thanks for all the calls and texts already, Heather.
Friday, April 24, 2009
Serious!
I'm serious about getting together a group for the "adventure cleanse". Here's Kris's blog to see kind of what it is. http://crazysexylife.com/2009/the-officical-adventure-cleanse-start-date-may-11th/
Thursday, April 23, 2009
PET Scan Monday
Well, I had my monthly doctors appointment on Tuesday and my Ca 27.29 tumor marker levels in my blood were elevated again this month. They went from 52 in February, to 85 in March, now to 118 in April. It doesn't necessarily mean anything yet but we are going to do a PET scan on Monday to see if there is something somewhere causing the levels to rise. Again it could be nothing but I don't ever seem to get that case. I do feel pretty good. I am still fighting the fatigue but I have been exercising every day and that is helping.
The raw diet is going great. I have even gone rawer if that's a word. I'm about 95+ % raw every day. I am going to participate in an "Adventure Cleanse" starting May 11th. Kris Carr who wrote the Crazy Sexy Cancer books is doing this cleanse as part of her new book she is writing. I belong to her website and I signed up to be part of the study for May. It's pretty much the same thing I am doing now but just cutting back on a few fruits that have high glycemic indexes. Sugar feeds cancer even if it's natural sugar. That's my downfall in this raw diet. If I'm going to "cheat" I eat a whole pineapple, not Reeses Peanut Butter cups which would have been my choice before. But since I should be cutting back on the natural sugar too I suppose I will need to cut back on the really sweet fruits.
I do eat a gigantic salad every night for supper, full of raw vegetables; organic baby greens, butter lettuce, zucchini, carrots, broccoli, cauliflower, red onion, alfalfa sprouts (that I grew myself in a jar)... But the key to my salad is the dressing!! If anyone would like to try it, it's absolutely fabulous!! Matt and I drink it out of the bowl when we finish the salad. I wouldn't be able to do this without a good healthy dressing because I've been a ranch girl my whole life!!
Anyway, here's the recipe, it's very watery so you need to use quite a bit and keep stirring your salad. Let me know if you make it and like it!! It's actually a twist on the Olive Garden Italian dressing that I have made raw and healthier. You also want to put it in a jar or something in the fridge and shake it up good every time you use it.
2 cups Apple Cider vinegar ( I use Braggs from Hy Vee in health food section or Natural Food Store)
1/2 cup water
1/2 cup agave nectar (also from HyVee or Natural Foods)
1/4 cup extra virgin olive oil organic if possible dark bottle the best
1 T fresh minced garlic
1 T fresh squeezed lemon juice
2t dried parsley
1/2 t dried oregano
2 shakes red pepper flakes or powder
2 t sea salt
Blend in the blender and refrigerate for an hour. Shake every time. It's delicious. Don't worry about the olive oil it's good for you! It's very tangy. It's also good on a bowl of just broccoli, cauliflower and carrots for an afternoon snack, I do that almost every day!!!
Love, Heather.
PS. If anyone wants to do the Adventure Cleanse with me starting May 11th-June 11th let me know and we'll start a group and do it together. It's not hard and I promise you'll feel great and lose about 10 pounds!!!!
The raw diet is going great. I have even gone rawer if that's a word. I'm about 95+ % raw every day. I am going to participate in an "Adventure Cleanse" starting May 11th. Kris Carr who wrote the Crazy Sexy Cancer books is doing this cleanse as part of her new book she is writing. I belong to her website and I signed up to be part of the study for May. It's pretty much the same thing I am doing now but just cutting back on a few fruits that have high glycemic indexes. Sugar feeds cancer even if it's natural sugar. That's my downfall in this raw diet. If I'm going to "cheat" I eat a whole pineapple, not Reeses Peanut Butter cups which would have been my choice before. But since I should be cutting back on the natural sugar too I suppose I will need to cut back on the really sweet fruits.
I do eat a gigantic salad every night for supper, full of raw vegetables; organic baby greens, butter lettuce, zucchini, carrots, broccoli, cauliflower, red onion, alfalfa sprouts (that I grew myself in a jar)... But the key to my salad is the dressing!! If anyone would like to try it, it's absolutely fabulous!! Matt and I drink it out of the bowl when we finish the salad. I wouldn't be able to do this without a good healthy dressing because I've been a ranch girl my whole life!!
Anyway, here's the recipe, it's very watery so you need to use quite a bit and keep stirring your salad. Let me know if you make it and like it!! It's actually a twist on the Olive Garden Italian dressing that I have made raw and healthier. You also want to put it in a jar or something in the fridge and shake it up good every time you use it.
2 cups Apple Cider vinegar ( I use Braggs from Hy Vee in health food section or Natural Food Store)
1/2 cup water
1/2 cup agave nectar (also from HyVee or Natural Foods)
1/4 cup extra virgin olive oil organic if possible dark bottle the best
1 T fresh minced garlic
1 T fresh squeezed lemon juice
2t dried parsley
1/2 t dried oregano
2 shakes red pepper flakes or powder
2 t sea salt
Blend in the blender and refrigerate for an hour. Shake every time. It's delicious. Don't worry about the olive oil it's good for you! It's very tangy. It's also good on a bowl of just broccoli, cauliflower and carrots for an afternoon snack, I do that almost every day!!!
Love, Heather.
PS. If anyone wants to do the Adventure Cleanse with me starting May 11th-June 11th let me know and we'll start a group and do it together. It's not hard and I promise you'll feel great and lose about 10 pounds!!!!
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