Sorry it's been so long since I've updated on here. It's been a rough 6 weeks. I've since had two epidural steroid injections. I'm hoping this second one will start to help. The neck pain had started to get better but the pain in my wrist and thumb has gotten worse. I'm taking so much pain medication that the morphene pain pump is next on the agenda I believe. I was hoping to get by for a while without it but I don't think I can do it.
The run went great, we had about 59 people come and run/walk. Thanks so much to everyone who came and to the sponsors for helping out with the shirts and medals. I wish I could have run in it but it just wasn't going to happen this time. I've kind of let my exercise and nutrition go out the window since this pain got so bad. I'm going to turn it around though, I am starting back on eating healthy again (all whole plant foods) after labor day.
Since my last post my tumor markers have kind of gone wild. They were in the 70's back in May, then jumped to 141 in June, down to 136 in July, now in August they are a whopping 327. You can't put a ton of stock in the tumor markers for most people but for me they have been pretty true to what's going on with my case since my recurrence last September. Speaking of which it's almost a year since that happened.
We did two weeks of radiation to try and shrink the tumor on my c6 nerve. However, my throat got so sore and I developed thrush in that time, I could hardly even drink water, we decided to quit. I will be starting on the BS101 Triple Negative Metastatic BC trial next week. Depending on whether I get the inhibitor or not, I may have chemo twice a week for two weeks and then a week off. I am hoping this will be the ticket because I am really getting tired of feeling crappy all the time and having so much pain. It's not me!
I haven't been working except I did get to take three close friends daughters' senior pictures. It made me feel so good to be able to do what I love and create some special images for them. I did have to split up the sessions and just do little sessions at a time because I get so tired and my arm and wrist get so sore, but it was worth it.
I'm in Estes Park right now with my parents and Sage and Ellie. They invited us out here for the weekend to relax and get away for a while. It is beautiful out here. I hope everyone is having a good labor day. I'll update when I find out what I'm getting on the trial.
Heather.
Saturday, September 5, 2009
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